Diabetes Patient Advocacy

By |2016-12-08T23:26:44+00:00March 15th, 2016|Thinking Like A Pancreas Blog|

By Bennet Dunlap -- Father of Two T1 Kids and Diabetes Advocate (It is OK to Skip to the Shortcuts Below  :-D) If you are on Gary’s email list, you know that learning to live with diabetes is not easy. We have all learned that just about everything makes diabetes care a little harder; activity, food, mood, attitude and more. It is an unwelcome addition to the list, but I’ve got one more - policy. Policy interacts with diabetes in many ways, at many levels. There are more than three dozen federal agencies that touch diabetes care, safety, access, and quality. State policy impacts schools, diabetes education, and even protocols to protect glucose testing from spreading infection in care facilities. Just as patient-healthcare teams create the best diabetes care, advocacy is the most successful when health professionals and patients work together. A Faster Cure’s white paper on health policy change says: The gold standard should be to have both scientific expertise and a group of patients who can speak both to the science AND the urgency needed to make change. - Back to Basics Better policy happens when officials hear the real needs of constituents. But for many people who care about diabetes, learning the intricacies of advocacy is just one thing too many. That is totally fair. Somebody Needs to Make Diabetes Advocacy Shortcuts. Fortunately, the Diabetes Patient Advocacy Coalition (DPAC) can help. People who live with diabetes founded the Coalition with the goal of making policy actions easy. DPAC helps more voices speak on gaps in the diabetes policy landscape. The Diabetes Patient Advocacy Coalition works with the policy teams at the American Association of Diabetes Educators (AADE), American Association of Clinical Endocrinologist [...]